Management of Prader-Willi Syndrome brings together the contributions of professionals with considerable expertise in diagnosis and management of PWS.
Clinical, social, family, and community issues are explored and management strategies identified.
Management of Prader-Willi Syndrome presents historical, medical, and genetic information to orient the reader.
The major portion deals with pragmatic guidelines, rather than research and diagnosis, and is directed to health and educational specialists in academic, clinical, and community settings.
Contents
Diagnosis and Genetics
- Clinical Findings and Natural History of Prader-Willi Syndrome
- Diagnostic Criteria for Prader-Willi Syndrome
- Molecular Genetic Findings in Prader-Willi Syndrome
- Laboratory Testing for Prader-Willi Syndrome
Medical Physiology and Treatment
- Medical Considerations in Prader-Willi Syndrome
- Gastrointestinal System, Obesity, and Body Composition
- Growth Hormone and Prader-Willi Syndrome
Multidisciplinary Management
- Neurodevelopmental and Neuropsychological Aspects of Prader-Willi Syndrome,
- Speech and Language Disorders Associated with Prader-Willi Syndrome
- Motor and Developmental Interventions
- Educational Considerations for Children with Prader-Willi Syndrome
- Tools for Psychological and Behavioral Management
- Educational and Social Issues for Adolescents with Prader-Willi Syndrome
- Transition from Adolescence to Young Adulthood: The Special Case of Prader-Willi Syndrome
- Vocational Training for People with Prader-Willi Syndrome
- Residential Care for Adults with Prader-Willi Syndrome
- Inpatient Crisis Intervention for Persons with Prader-Willi Syndrome
- Family Support and Advocacy—A Role for the Social Worker
- A National Approach to Crisis Intervention and Advocacy
- Advocacy Issues: School Discipline and Expulsion
- Advocacy Issues: Sexuality
Index
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